STOP PRESS!

Well it has been a few weeks since our last post, Amélie has been doing ok. Her walking is getting stronger, we have been trying her outside but she is still unsure and goes down on her knees if in doubt. She got her Piedro Boots the other day and after 6 months waiting, when I got her to the hospital they went the pink ones we were supposed to get but bloody ugly Navy ones, and look like a boys boot! Ugh! What can you say? Budget cuts!

Well last week I registered for the Flora Women's Mini Marathon in Dublin, hopefully more people will volunteer to do the race for us and this will begin the fundraising effort for her Tobi eyegazer. I have a few ideas of what I would like to achieve this year and this is only the first, so Kiki has been helping me get fit too over the last few weeks, we have been going for a daily 9km walk and she has been really enjoying them, she has even begun to pay more attention to the animals we come across. I can't wait for her to get back to horse riding again to see if she acts differently towards the horse now.....

We were contacted last week by a journalist from our local paper who wanted to do a story on our fundraising effort, I said yeah and they sent a photographer around to take some photos which turned our quite well (apart from me being in them lol), it will be out tomorrow and hopefully more people will be educated about Rett Syndrome. Awareness is key to finding the reversal to this nightmare and THIS WILL HAPPEN!............. It has to.