This blog is dedicated to my baby daughter Amelie Kiki and her courageous fight against Rett Syndrome. What is Rett Syndrome? Imagine the symptoms of; Autism, Cerebral Palsey, Parkinson's, Epilepsy and Anxiety disorders all rolled into one little girl. Now imagine the pain of seeing your beautiful baby girl slowly slipping away before your very eyes.
Thursday, 23 August 2012
Nom, Nom, Nom :)
There has been a study circling the Rett Facebook pages about the benefits of fish oils. Thanks to one of the other parents on the FB pages we decided to put Amelie on Vitabiotics Ultra Omega-3 Fish oils 3 weeks ago, now I don't know whether it is due to the FO or just a coincidence but she seems to be doing really well and if she is going through regression then hopefully this will help rescue her skills. All we hope for is that she keeps her spark, the magic that makes her Amelie Kiki, our rainbow baby. She is so fast at moving about and she is just so loco!!! She has a wicked sense of humour and great timing. She has a few words and I really don't want her to lose them, it is so lovely hearing her husky little voice even if it means her SCREAMING Mummy from the top of the stairs. She shouted "Pamela" down on Tuesday night, Stephen and I nearly fell... Little monkey. She has been so much more aware of her sisters this summer too, but having said that how could she ignore the whirlwinds that are Scarlett and Grace??? She crawled over to Scarlett and hugged her yesterday, and fell to sleep in Stephens hands at lunch yesterday, Nom, nom, nom.... She is ediable. So its off to get the rest of the back to school sorted today and to collect Amelie's new kicker boots.
Labels:
amelie kiki,
crying,
cure,
diagnosis,
fish oils,
girls,
medicine,
mutation,
parenting,
regression,
remedies,
retts syndrome,
screaming,
self harm,
special needs,
vitamins
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Lovely pictures
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