This blog is dedicated to my baby daughter Amelie Kiki and her courageous fight against Rett Syndrome. What is Rett Syndrome? Imagine the symptoms of; Autism, Cerebral Palsey, Parkinson's, Epilepsy and Anxiety disorders all rolled into one little girl. Now imagine the pain of seeing your beautiful baby girl slowly slipping away before your very eyes.
Monday, 1 October 2012
OCTOBER A month of AWARENESS
October is Rett Syndrome and Baby loss awareness month here in Ireland. As most of you know I have lost my only son Liam to Stilllbirth and would really like to bring light to the issue that it can happen to anyone, so always be vigilant during pregnancy and remember those who have suffered this great loss and no longer have their children with them. (See A Little Lifetime) Also That my daughter HAS Rett Syndrome but she isn't defined by it. Yes she may not be able to talk full sentences (hardly any words), her hands are not always of use to her, and she may not be able to walk YET! But she is still cheeky, she is still chatty, she has a mean sense of humour and we haven't lost her to Rett Syndrome and someday she will tell you "I told you so"! See http://www.rettsyndrome.ie and www.RSRT.org A Reversal is near..........
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