Difficulties!!!

Hey everyone, sorry again about the long absence. Amelie has been a little under the weather lately. Last weekend she had the vomiting bug (which affected both ends :D !) and her refux had become unmanageable.  In an earlier post I mentioned that she couldn't seem to keep different foods down, well it had become ridiculous and over last weekend she was unable to eat anything, she became so weak that she stopped walking over the weekend. Really scary thinking about her losing that ability now that she has gained it. Well on Monday I decided to ring her pediatrician Dr.N, he was very good and slipped her into his clinic that afternoon. He confirmed she had reflux and prescribed her 2.5mls of adult Gaviscon, 1.68mls of Primacine  and 5mls of Omeprazole Suspension and also ordered a Barium test but will cancel it if the meds sort the problem as he doesn't want to give her radiation if it isn't needed. So so far this week she is doing alot better, she had been eating far better and has started to get her strength back, and she is sleeping well again (Thank God).

Last week she was seen by her Physio and he was very impressed with her steps and even said that in all honesty he didn't expect her to be walking by herself this soon due to her muscle tone, so he was delighted, as was I! He suggested we buy her a comfy chair to stop her sitting on the ground and encourage her to get up and walk from sitting position. So I got one from Smyths, as you can see I think you will agree that she really likes it!

She hasn't been doing her horse riding of late as the weather has been a nightmare but she will be getting back to it soon, but she has been going to P's house for her Jack and Jill hours and in those 4 hours I waste my time cleaning the house just so it can be dirtied in about 20 mins of them all being home! I think I need do something better with my time! HA....

Amelie has been sounding out different sounds lately, she is saying the b sound (new), and she is starting to say "down" as well as up. I would love to hear her say mummy, hug or I love you! Maybe someday..........

But before I go I just want you all to remember that although we are living with Kiki's condition we need you remember that her condition can be fatal, only last week we lost another little angel Emma Reilly of Maryland, USA. She was 5, was doing good but took a turn for the worst and died we need to change this. Please watch this video, and remember this is Amelie Kiki McCormack! Thanks. xxx

http://vimeo.com/52749635 Your support is her future.

 (please see www.jackandjill.ie )