Over the past week Amelie has been really trying to stand herself. On Saturday she stood for 4 seconds all by herself!!! Now that may not sound like a lot to normal parents however this is a HUGE milestone for her, and ever since she has been really trying to do it again, everytime she is standing she is pushing away from the thing she is holding onto to try and test the water! I really believe that she will be walking by Christmas! Oh talking about Christmas (yeah I know you love it! LOL) we have decided on her presents for this year, again this may sound like no big deal but buying for a child with Rett's is no easy task, there is a lot of depressive thoughts about how she should be able to do this and that, and how she doesn't need anything because she can't play with anything etc, however we have decided and thankfully it seems like it maybe a nice time this year! ANYWAY, back to this week, we went to mother and toddler group where she demanded crackers and then fell asleep! Like ALWAYS haha. We then went to the Cootehill Fair Day, it was busy and cold, but Kiki really liked looking around although she wanted out, and started to try and take her straps off. We let her walk holding our hands, she is getting so strong holding one hand now, the wee mite. She isn't self harming as much and her routine is very good too, she is in great form. I know she is falling over when in sitting position, but only when tired, she is really happy, only 1 out of seven days maybe a bit off. I will take that! I have been chatting alot to other parents via FB and god does that help alot, the support is just great and especially when you get chatting to parents of girls Amelie's age it is good to know you are not alone (if you know what I mean). Well I hope that Kiki's good week keeps on into this week. Thanks to all those that voted on www.rsrt.org/vote. Votes close tomorrow 19th Sep. We didn't beat the dog but if we educated anyone on Rett's that's a result. See you next week.
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