This blog is dedicated to my baby daughter Amelie Kiki and her courageous fight against Rett Syndrome. What is Rett Syndrome? Imagine the symptoms of; Autism, Cerebral Palsey, Parkinson's, Epilepsy and Anxiety disorders all rolled into one little girl. Now imagine the pain of seeing your beautiful baby girl slowly slipping away before your very eyes.
Tuesday, 4 September 2012
The Camel
Whoops I never did get back to update.... Well we went to see Dr.Nick yesterday and he said he was happy enough with her. Her self-harming is a bit of a concern but sure we can't have it all and her skills are good at the moment. He thought she was good at interacting with others and her weight, height and head size are all good. He will see her back in 6 months to observe her, we can go back at any time if we are concerned about breathing, seizures, etc. So feeling a little happy today.... Well I have just pulled her out of the coal box where she just covered her lovely clothes in coal dust arrr, monkey! Thanks to Scarlett Amelie is now spitting like a camel! Urrr And everyone is a target! She seems alot better in herself this morning, long may it last, think I may take her out for a walk as long as she doesn't spit at every stranger who goes by! LOL
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