Lets make History

Poor Amelie got a cold today. She woke from her nap sniffling and sneezing with a runny nose. We can't help but panic these days when she gets these things because we have heard so many stories of Rett girls dying of pneumonia, bloody Retts I HATE YOU!!! But she sat most of the afternoon in her pushchair, half asleep and smiling. She is such a great little bean. Her big sisters were getting ready to go to a birthday party and it dawned on me that we would never get her ready for a party like this (if we don't get a cure). will she have friends, what will she feel like watching her sisters living a completely different, free, independent life. Made me feel a little down :( however she did start responding to music again. She started saying "dance" and started swaying, something she had lost some 9 months ago. Amazing stuff, it was fantastic I know that she seems to have lost "computer" but it may just be on lay away. I love her. I seen another blog today where a little girl said Mummy and Daddy today, words she hadn't said, all this gives me hope. Every day we are hopeful that a cure will be found, Neil Armstrong died today, he made history (conspiracy or not) lets hope some day we see Retts making history for all the right reasons!