This blog is dedicated to my baby daughter Amelie Kiki and her courageous fight against Rett Syndrome. What is Rett Syndrome? Imagine the symptoms of; Autism, Cerebral Palsey, Parkinson's, Epilepsy and Anxiety disorders all rolled into one little girl. Now imagine the pain of seeing your beautiful baby girl slowly slipping away before your very eyes.
Wednesday, 15 August 2012
Success!!!
Well Stephen had a successful day yesterday with Amelie. Like I said previously she hasn't been in great form this past week (after 3 weeks of being in a fab mood), so I decided to take the two big girls up to my sisters house to give her a break from the chaos. So she spent the day between napping and working with daddy. This evening Stephen was feeding her and when she finished she looked into her bowl and said as clear as day "All Gone"!!!! She then leaned over and started to kiss and hug him, he said he was in tears. I am so happy and I truly believe that all these words we say to her are going in and the nasty git that is Retts is just just stopping it from coming back out. How frustrating? No wonder the little mite is banging her head off radiators and stairs in frustration...
Labels:
medicine,
parenting,
retts syndrome,
special needs
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This is great to hear, but also heartbreaking. How do you find the strength? X
ReplyDeleteThis is beautiful - and must make all the hard work worthwhile.
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