This blog is dedicated to my baby daughter Amelie Kiki and her courageous fight against Rett Syndrome. What is Rett Syndrome? Imagine the symptoms of; Autism, Cerebral Palsey, Parkinson's, Epilepsy and Anxiety disorders all rolled into one little girl. Now imagine the pain of seeing your beautiful baby girl slowly slipping away before your very eyes.
Saturday, 18 August 2012
So..... It's 6am!!! I think I will kill her, well not really but she could get a sore head if she keeps hitting the wall...Grrr Sleep deprivation doesn't sit well with me, all the babies slept from day dot so when I don't get at least 6 hrs I physically sick. Maybe it is from all the medication that I take for the Arthritis, knows? But all I know is I feel like puking. Stephen is currently down stairs with missy moo at the moment and it's not because he is some wonderful man who wants to give me a rest, noooo it's because he fell asleep playing the PlayStation! So anyway she hated the pool. Cried the whole time, then when were parked some cow walked over to stephen and asked if we were moving out of the disabled spot because someone with a disability was waiting to use it. She didn't look for a disabled badge (which was displayed on the front) she just saw a pushchair and assumed that we were illegally parked... Ignorant Bitch! Thats all I will say to that!
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